Tuesday, February 1, 2011

Being flexible

I am not sure how it goes but I know there is a saying that goes something like this....best made plans are something something something???? Well my plans for today got totally turned around! I was supposed to be going to the beach today to see my daughter and my parents and spend sometime with them. I am still going, just not today..:(
Anyone will tell you though when it comes to having fibro, you will learn to be flexible. I know that I am a little being on time challenged (being on time, no comments needed from the p-nut gallery) I have had to learn that it is ok for me to change my plans completely. Jim and I have also learned not to commit to alot of things or if we do commit we make sure that who ever it is with they understand what might come up.
There have been times where Jim has gone without me and that I do not like but there is no reason for Jim to be miserable too. I don't get upset with Jim for going, I do get sad. I mean I would be lying if I said it didn't bother me at all but then again I am usually feeling pretty bad and all I want to do is be left alone at that point.

Back to today.....I had plans this morning and these plans meant that I had to be up and somewhere by 9:30am. That was my first mistake of the day!!!!! Me and mornings do not do well especially when I am not feeling well, which I was so not feeling this morning. My friend and I got done about 1:30 and then I went to the grocery store to grab a few things for Jim. (I didn't want him to stave while I was gone) I don't know what happened between the grocery store and me walking to my car but my whole body went into complete shutdown! I drove home put the groceries on the counter, walked up the stairs and crawled under the covers and that is all she wrote for a couple hours. My body felt as thought I had been hit by the infamous mack truck that hits all of us! My legs and feet, I can't begin to explain that pain. There was no way I was going to the beach today and I hated that.

Tomorrow is a new day and I am heading to the beach...:) Am I nervous tonight, yes I am. Why??? Because I want to wake up tomorrow and be ok to drive....

This is just one of the fun parts of having fibro. So when people tell me you look good or think just because I am up and about that there is nothing wrong with me and I should be working or why don't I work?? Today is a great example!!!!!!!
My body can go from one extreme to the other in a matter of minutes!!!

On that note, I am on the couch and Jim is sitting in his chair having to say my name because I keep falling asleep as I am typing this.
So....sweet dreams


  1. Hi. I have fibromyalgia too. I can totally relate. I like your style and your blog. I have a blog too, with a similar title. I'm going to become a follower of yours. Maybe you could check mine out sometime.


  2. Lynn, a little advice from the 'old maid picture-straightener'. When you're nodding off on the sofa, that's the time to go to bed. You need your rest.
    Don't worry about informing people or looking at web sites when you could be giving your body the rest it so badly needs.
    Now....I SO DO know about the plans that just don't work out.
    I stress, too, about dates and times when you're supposed to be 'up and running' with a project or meeting. It's a part of living with 'The Preliminary Hell'.
    When I got ready for Norma's funeral Monday night, I stressed over which fragrance to wear, which hat to wear, which shoes, and even about what to say to Bobby when I saw him at the funeral home. I worried about what Barbara would be wearing, and how I might get through the cloud of smoke which would surely be hanging around outside the door of the Funeral Home.
    It's just what we do, Babe, and no one can understand us unless they're one of us.
    Effete Gay Men have NOTHING on us. We're the true Drama Queens of this world. We have to have these things all worked out, and, if something goes wrong, we have a panic attack. Then, even if the event goes well, we Flare.
    We're damned if we do, and we're damned if we don't.
    We're in all societal groups, and we live all over the country, but our addresses are all still the same...PAIN CITY!
    I pray for you. I pray that God will help you bear the burden of your restless spirit and the pain it causes you, and I pray for Jim.
    He's a ROCK!...and every Queen needs a huge rock for her foundation. We are, after all, built upon a rock.
    Let me say this, also:
    I've been around you a long time, and I've seen you (and pictures of you) at your worst. You always look just fine. I know that if I could see what you feel like, I'd be horified, but, on the outside, you always look great.
    Get the rest you need. Puffy eyes don't make a good face. Don't spend too much time trying to look pretty...you already are!
    Give Jim a huge hug for me, and tell him I love him. Give Giz a hug, too, from his Aunt Claire.
    Get your rest!

  3. I have fibro as well as my sister-in-law and we were just commenting about how hard it is to commit to anything because you never know how you are going to feel the next day.
    I have a wonderful husband too. Thank God for them!

  4. Ughhh that can be so frustrating and discouraging! But you're right, if nothing else we've had to learn to be flexible!
    {gentle hugs}