Saturday, March 5, 2011

Cant walk

My husband and I have an inside joke / saying and it is that he will never push me in a wheelchair. He will do everything else for me but that is crossing the line for him...haha. (it is a joke between us, it really is)
Anyway, I never really thought much about me having to use a wheelchair one day but after this past week, that could be more of a reality for me. Why do I say this??? Because the pain in my feet has been so bad the past couple of days!!!!! Just the thought of standing up and taking a few steps is almost unbearable. It feels as though I have a million tiny needles poking me in my feet. It seems to get worse at night. Not only my feet but my calves as well have been extremely painful....for some reason rubbing helps my calves some....

OK now lets go to the top of my head.....I don't want to brush my hair because the bristle touching my scalp hurts really is the kind of pain that makes your stomach upset when the bristle hits my scalp. Does that make sense??
This pain doesn't always happen and it's been awhile...I'm ready for it to go away again...:(

One last thing....If someone wanted a mixed drink and they said, shaken not stirred then I would be the person they would give it to.
As many of you that have fibromyalgia know your body jerks. Well, at least mine does!!! I have good days and I have bad days....I feel like today has been a pretty bad day and my grip in my hands has not been all that good either???? I haven't quite figured that part out yet. It does worry me some days though....
Right now I am typing this and when I say my body is jerking it is not small ones, they are big enough for Jim to see across the room and for me to move things.
It doesn't just happen at night is frustrating though when I am trying to fall asleep. (I am worried I will hit Jim...haha)

The good part to this blog is....I was able to get outside today and do a little bit of yardwork! That makes me very happy! We have a long way to go but it is a start. It takes me ALL spring and summer now to do what I used to be able to get done in a month.....

O more thing.....I have shingles on my arm!!!!!

On that note I am going to bed....gotta get up for church in the morning. I have alot to be thankful for!!


  1. I know what you mean! What the heck is up with the muscle spasms and the pain on the bottom of our feet????? Feels like I'm walking on glass.

    My body jerks too........this sucks!

  2. Lynn: Darling! I so wish I were nearer to you, so I might could be of some small help.
    I shake, too, and it makes typing and playing the piano really more of a task than they should be. I used to SO enjoy playing the piano (you know) and now it's like a chore.
    I bought all that lovely recording equipment to record my music, and it's been so long (and Steve has not set it up to record) that I don't know if I'll ever be able to record now.
    My feet and calves have been agonizing lately, too. Perhaps the spring has something to do with it. I have one of those machines that massage your legs, but it hurts where I broke my leg a few years ago, and never got it set.
    My feet, Steve's feet, and Barbara's feet (which are really HUGE!) have been cramping a lot. Those are the only people I've asked about this, but I wonder if there's something related. We normally never (or seldom) have muscle cramps. There are the 'charley-horse' type of cramps, where the muscles make you look deformed and drawn.
    Try to keep going, hon. You're still WAY too pretty and full of life to set in a wheelchair.
    I've vowed to never leave my house again if I have to go in a wheelchair. It's just too humilitating for a Grande Diva.
    I have to be in charge, or I won't go along.
    I can't believe God is now afflicting you with shingles.
    Head for the Aclovir/Zovirax!
    Give my love to all there, and give Jom a HUGE hug from The Queen. He's such a great guy.
    You'll have to arrange a time for coming to see me and my new place soon.
    It's a lot of work, but 'it will be pretensious', and we all know that "An ounce of pretension is worth a pound of manure".
    It's not on Dogwood Lane, but it IS on Cherry Street. Right out of Steel Magnolias.
    You were the first one to recommend that movie to me, remember?
    You've given me so many memories over the years. Keep up the good work.
    Many Hugs all around!