I was struck by something the other day that I have always known but I was reminded of it and it has stuck with me. All of us with Fibro are not the same!! Not one of us has the exact same symptoms. We have alot of the same, some are worse, some are less, but no 2 are exactly alike!!! And you NEVER know who has it! I have been going to this yogurt shop off and on for a couple months now and always talk to the employees, just idle chit chat and they all looked "just fine" to me. Yesterday I wore my fibro t-shirt in the yogurt shop and the young lady ringing me up made a comment about how she had never seen a fibro shirt before. I asked her how she was familiar with fibro and she told me she has had it for about the past 4 years. I was very surprised to say the least. I didn't want to ask her her age but I would say she is no older than 24ish???? I asked her how bad she had it and she told me as long as she takes her medicine she can function pretty well and live her life. (boy am I jealous) She asked me how long I have had it and about me, I told her it has been 5 years this month and that I live day to day...yesterday just happened to be about a 7 on a scale of 1-10 (10 being the worst) I looked terrible!!!! It took everything I had to just get out of the house and I had to get out of the house, I was going to go crazy!! The young lady looked all perky and not sick at all...of course I would never say that to her, I know better!!! haha
The bottoms of my feet were on fire, my ankles felt as though they could snap at any minute, my hips, I can't really explain the pain but my left one is the worst and lets just say it can make me want to snap sometimes! My energy was in the toilet and I am sure if you were to take one look at me you would say, wow she looks rough!!!!
Just a small side note, I really wish they would take the Lyrica commercials off the TV, I think they do us more damage than good! People that don't have fibro see these and think that we should be able to take a pill and start to feel better, it is not that easy!!! I wish it was....They don't realize everything else that goes / comes along with it.
This weekend is a big one....my daughter is turning 21! Wow, I feel old...I am praying that my body cooperates and allows me to really enjoy it. My husband and I are driving to the beach (my daughter is going to college there and living with my parents) and we are taking her and her boyfriend and family out to an awesome German restaurant, Bodos to celebrate...:-) yummy!!!
Really interesting post - such a simple but important point you noted about everyone's experience being different
ReplyDeleteI couldn't agree more with you about the Lyrica commercials. That stuff just made me worse. I'm glad it works for some people but those commericals are so misleading to non-fibro folks. Congrats on your daughter's birthday! Enjoy your weekend.
ReplyDeleteRebecca
Lynn, I know that I hardly ever comment, but I've had the same symptoms all week. I've spent one day in bed, unable to sit up without throwing up. Lyrica has probably done more harm than good, and it can cause thoughts of suicide....as if we didn't already have enough trouble.
ReplyDeleteI can't believe Alex is 21. She's still my little girl!
I so clearly remember her gathering eggs with me and her uncle Steve when she was here once. She was so little and young.
Give her my love, and tell her boyfriend to get a haircut.
Call me sometimes. You'll just have to keep calling to find me somewhere besides the doctor's office or in-route. It seems that I'm spending all my time in some kind of care.
I'm doing better, and I have only THREE chemo treatments left.
I'll be through before Christmas.
Thank God!
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Here in Sicily no one really understands what fibromyalgia is, when I tell them about it they think it's a muscle problem and they tell me to join a gym. Who has the energy for that? I agree with you about Lyrica. Happy New Year!
ReplyDeleteHello,
ReplyDeleteI am a fellow member of the crazy life we live with Fibromyalsia and have experienced a recent break-though in fighting my symptoms . If you are anywhere near as frustrated and fed up as I was with the pain & truly want to help others with this horrific syndrome, please take just a few moment to read my personal testimony & decide if you would like to join me in healing our fellow Fibro-nians...
In my opinion, Fibromyalsia is an invisible leech that latches onto our unsuspecting souls & can literally feel like it quickly sucks the life right out of us. Stunned, confused, and left writhing in pain, we are left feeling like a hollow-shell of our former selves.
Doctors, specialists, lab tests galore for what feels like an eternity to get a diagnosis, just to end up with the doctors giving us some synthetic drugs that barely provide relief & in some cases - cause more symptoms & side effects!!
Disabling whole body symptoms, severe depression/anxiety, chronic fatigue, excruciating pain, fibro-fog confusion, & so much more-- has definitely caused some major bumps in my life!
Fortunately, my great friend introduced me to the best blessing I could have ever prayed for TRUE RELIEF!! The natural alternative therapy I started last month because of her, has brought renewed hope, joy, and happiness back into my life.
80% of my severe fibro symptoms are already COMPLETELY GONE in just 2 weeks!! I am amazed at the transformation my body has achieved in such a short time. As an awesome added bonus, I have also lost 15 lbs since I started the program because of the overall health benefits! Yay!!
I feel amazing, strong, healthy, and have gotten back the mental clarity and joyful energy I have missed so much!
Words cannot describe how tremendously grateful I am for my friend to share this natural alternative therapy with me! The best thing I can think of to pay her back for how much she has done for me, is to PAY-IT-FORWARD to all of my fellow FIBRO Friends!
Therefore, I encourage you to contact me today so I can share this blessing & give you the same gift of hope that was given to me. Isn't it time we all got back to living the healthy, happy life of our dreams??
Feel free to contact me anytime! :)
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giftofhope413@gmail.com
FACEBOOK: HTTP://WWW.FACEBOOK.COM/ENDLESS.POSSIBILITIES.319
Sounds like you had a terrible day yesterday...Hi :0) My names Valerie and I have had Fibromyalgia since 1996. Just checking out your blog and could relate to this post...for me it's my right hip and leg that's worse (sciatica). Come over and visit me sometime at www.fibromyalgiacareblog.com
ReplyDeleteHello everyone! I'm an avid health-nut preparing for medical college, I came across this blog while doing research.
ReplyDeleteI've suffered from depression my whole life, and a mom of my close friend has fibromyalgia. I feel for all of you in this struggle, words cannot express the pain of fibromyalgia/depression.
What I've found in my research is that popping pills usually never helps, in fact it's often worse. The closest I've come to finding something to prevent the invisible disease is this http://www.youtube.com/watch?v=wDjDsIVWwZw&list=PL_57JIxfFMmTl5qKl0maMGqZ4pdlMM52Y
After taking this supplement for a few weeks, my depression decreased significantly. I would usually have panic attack several times a week, now I have only had one in the past 2 months. I realize it sounds crazy, but it's simple science. Diseases like this come from a lack of nutrition, and this supplement fills the gap. You can read more info here http://www.vemma.com/vemma/?referrer=629136706&source=mv.com&opportunity=on&website_url=KEEPDREAMING&cou=USA&co=USA
I would love to talk to you all if you would like to! Praying for all!
I had fibro for 20 yrs and I am now cured as of Mar 16 2013 . If your interested in my story , then drop me a line . Glenda
ReplyDeleteI recently turned 60 and have had fibromyalgia for 34 years; it took 15 years before I was diagnosed. As many have experienced, I was intially told it was "in my head" which I willingly took the blame for, then was given various "new" drugs and pain killers, all of which I couldn't tolerate or which resulted in such fogginess the next day I couldn't function. For many years, I was able to manage moderately with diet, stress management, and gentle exercise. I started a new career very recently which is very stressful and I have no retirement due to not working outside the home while raising a family and while attending college. My symptoms have gotten very severe the last year which has effected my ability to work, care for myself and home, socialize, and be physically active. Thankfully, I sought alternative medicine last fall and am beginning to see tiny improvements but my life feels very small right now. I fear I will lose my job (I am divorced and live alone), and I am unable to retire (I will have to work into my 70's) as I was a stay at home wife/mother for almost 30 years prior to divorcing then attending college for 8 straight years. I am feeling extremely anxious that my current quality of life will be what I will be facing for the rest of my life...
ReplyDelete...Sidenote; I would appreciate not having comments providing me with a "cure" that will solve all my problems as I have tried many, many different routes to healing and reading those will not be helpful to me. I need to be able to express myself and be heard by those who also struggle with fibromyalgia and understand the challenges.
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All thanks to this great herbal doctor who cured me from (LUPUS DISEASE) his name is dr imoloa. I suffered lupus disease for over 8 years with pains like: joints, Skin rash, Pain in the chest, swollen joints and many more. The anti-inflammatory drugs couldn’t cure me, until I read about his recommendation. 2 months ago, I contacted him through his email address. drimolaherbalmademedicine@gmail.com . and he sent me the herbal treatment through DHL courier service and he instructed me on how to drink it for good two weeks. after then, And I was confirmed cured and free at the hospital after taken his powerful herbal medications You too can be cured with it if interested, he also uses his powerful herbal healing medicine to cure disease like:parkison disease, vaginal cancer, epilepsy, Anxiety Disorders, Autoimmune Disease, Back Pain, Back Sprain, Bipolar Disorder, Brain Tumour, Malignant, Bruxism, Bulimia, Cervical Disk Disease, cardiovascular disease, Neoplasms, chronic respiratory disease, mental and behavioural disorder, Cystic Fibrosis, Hypertension, Diabetes, asthma, Inflammatory autoimmune-mediated arthritis. chronic kidney disease, inflammatory joint disease, back pain, impotence, feta alcohol spectrum, Dysthymic Disorder, Eczema, skin cancer, tuberculosis, Chronic Fatigue Syndrome, constipation, inflammatory bowel disease, bone cancer, lungs cancer, mouth ulcer, mouth cancer, body pain, fever, hepatitis A.B.C., syphilis, diarrhea, HIV/AIDS, Huntington's Disease, back acne, Chronic renal failure, addison disease, Chronic Pain, Crohn's Disease, Cystic Fibrosis, Fibromyalgia, Inflammatory Bowel Disease, fungal nail disease, Lyme Disease, Celia disease, Lymphoma, Major Depression, Malignant Melanoma, Mania, Melorheostosis, Meniere's Disease, Mucopolysaccharidosis , Multiple Sclerosis, Muscular Dystrophy, Rheumatoid Arthritis, Alzheimer's Disease Contacts him today and get permanently cure. contact him via... email- drimolaherbalmademedicine@gmail.com /whatssapp-+2347081986098.
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ReplyDeleteIt is a cowardly to say no to herbal medicine. It is fear based. And it is dishonest to what my heart wants. Don't build a wall around yourself because you are afraid of herbals made or taking a bold step especially when it's come to health issues and getting cure. So many young men/ women tell me over and over that Dr Itua is going to scam me but I give him a try to today I feel like no one will ever convince me about herbal medicine I accept Dr Itua herbal medicine because it's cure my herpes just two weeks of drinking it and i have been living for a year and months now I experience outbreak no more, You can contact him if you need his herbal medicine for any such diseases like, Herpes, Schizophrenia,Cancer,Scoliosis,Fibromyalgia,Fluoroquinolone Toxicity Syndrome Fibrodysplasia Ossificans Progressiva.Fatal Familial Insomnia Factor V Leiden Mutation ,Epilepsy Dupuytren's disease,Desmoplastic,Diabetes ,Coeliac disease,Creutzfeldt–Jakob,,Lyme Disease,Epilepsy, ,ALS,Hepatitis,Copd,Parkinson disease.Genetic disease,Fibrodysplasia disease,Fibrodysplasia Ossificans Men/Woman infertility, bowel disease ,Huntington's disease ,Diabetes,Fibroid. disease,Lupus,Lipoid Storage diseases( Gauchers disease),Polycystic Disease.,Cerebral Amyloid Angiopathy, Ataxia,Cirrhosis of Liver,Arthritis,Amyotrophic Lateral Sclerosis,Alzheimer's disease,Adrenocortical carcinoma.Asthma,Allergic,HIV, Epilepsy, Infertility, Love Spell,. Email..drituaherbalcenter@gmail.com then what's app.+2348149277967.... My advice to any sick men/women out there is simple... Be Always an open book. Be gut wrenching honest about yourself, your situation, and what you are all about. Don't hold anything back. Holding back will get you nowhere...maybe a one way ticket to lonelyville and that is NOT somewhere you want to be. So my final truth...and I'm just starting to grasp this one..
It is no secret that I have a very deep and personal relationship with God. I have pushed and resisted that relationship this past year through all the bullshit I have had to go through living with Herpes but once again, God is bigger than my stubbornness and broke through that outbreak cold sore and all I had Genital Herpes. For me personally, hearing over and over how I am not good enough has really invaded my mind in the worst way possible. I completely shut down and I was just waking up like is this how life going to end this temporary herpes outbreak “fuck everybody with herpes if you know what I mean” but let's be honest here...
ReplyDeleteIt is a cowardly to say no to herbal medicine. It is fear based. And it is dishonest to what my heart wants. Don't build a wall around yourself because you are afraid of herbals made or taking a bold step especially when it's come to health issues and getting cure. So many young men/ women tell me over and over that Dr Itua is going to scam me but I give him a try to today I feel like no one will ever convince me about herbal medicine I accept Dr Itua herbal medicine because it's cure my herpes just two weeks of drinking it and i have been living for a year and months now I experience outbreak no more, You can contact him if you need his herbal medicine for any such diseases like, Herpes, Schizophrenia,Cancer,Scoliosis,Fibromyalgia,Fluoroquinolone Toxicity Syndrome Fibrodysplasia Ossificans Progressiva.Fatal Familial Insomnia Factor V Leiden Mutation ,Epilepsy Dupuytren's disease,Desmoplastic,Diabetes ,Coeliac disease,Creutzfeldt–Jakob,,Lyme Disease,Epilepsy, ,ALS,Hepatitis,Copd,Parkinson disease.Genetic disease,Fibrodysplasia disease,Fibrodysplasia Ossificans Men/Woman infertility, bowel disease ,Huntington's disease ,Diabetes,Fibroid. disease,Lupus,Lipoid Storage diseases( Gauchers disease),Polycystic Disease.,Cerebral Amyloid Angiopathy, Ataxia,Cirrhosis of Liver,Arthritis,Amyotrophic Lateral Sclerosis,Alzheimer's disease,Adrenocortical carcinoma.Asthma,Allergic,HIV, Epilepsy, Infertility, Love Spell,. Email..drituaherbalcenter@gmail.com then what's app.+2348149277967.... My advice to any sick men/women out there is simple... Be Always an open book. Be gut wrenching honest about yourself, your situation, and what you are all about. Don't hold anything back. Holding back will get you nowhere...maybe a one way ticket to lonelyville and that is NOT somewhere you want to be. So my final truth...and I'm just starting to grasp this one..
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ReplyDeleteGod bless Dr. maggi for his marvelous work in my life, I was diagnosed of Hsv and I was taking my medications, I wasn’t satisfied i needed to get the Hsv out of my system, I searched about some possible cure for Hiv, i saw a comment about Dr. maggi, how he cured HIV, HERPES, DIABETES and CANCER with his herbal medicine, I contacted him and he guided me. I asked for solutions, he started the remedy for my healing, he sent me the medicine through UPS SPEED POST. I took the medicine as prescribed by and 8 days later i was cured from Hsv, Dr. maggi truly you are great, do you need his help also? Why don’t you contact him through drmaggiherbalhome@gmail.com or whatsApp him on +19179796387
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