Friday, October 19, 2012

We are all so different...

I was struck by something the other day that I have always known but I was reminded of it and it has stuck with me. All of us with Fibro are not the same!! Not one of us has the exact same symptoms. We have alot of the same, some are worse, some are less, but no 2 are exactly alike!!! And you NEVER know who has it! I have been going to this yogurt shop off and on for a couple months now and always talk to the employees, just idle chit chat and they all looked "just fine" to me. Yesterday I wore my fibro t-shirt in the yogurt shop and the young lady ringing me up made a comment about how she had never seen a fibro shirt before. I asked her how she was familiar with fibro and she told me she has had it for about the past 4 years. I was very surprised to say the least. I didn't want to ask her her age but I would say she is no older than 24ish???? I asked her how bad she had it and she told me as long as she takes her medicine she can function pretty well and live her life. (boy am I jealous) She asked me how long I have had it and about me, I told her it has been 5 years this month and that I live day to day...yesterday just happened to be about a 7 on a scale of 1-10 (10 being the worst) I looked terrible!!!! It took everything I had to just get out of the house and I had to get out of the house, I was going to go crazy!! The young lady looked all perky and not sick at all...of course I would never say that to her, I know better!!! haha
The bottoms of my feet were on fire, my ankles felt as though they could snap at any minute, my hips, I can't really explain the pain but my left one is the worst and lets just say it can make me want to snap sometimes! My energy was in the toilet and I am sure if  you were to take one look at me you would say, wow she looks rough!!!!

Just a small side note, I really wish they would take the Lyrica commercials off the TV, I think they do us more damage than good! People that don't have fibro see these and think that we should be able to take a pill and start to feel better, it is not that easy!!! I wish it was....They don't realize everything else that goes / comes along with it.

This weekend is a big one....my daughter is turning 21! Wow, I feel old...I am praying that my body cooperates and allows me to really enjoy it. My husband and I are driving to the beach (my daughter is going to college there and living with my parents) and we are taking her and her boyfriend and family out to an awesome German restaurant, Bodos to celebrate...:-) yummy!!!



   

14 comments:

  1. Really interesting post - such a simple but important point you noted about everyone's experience being different

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  2. I couldn't agree more with you about the Lyrica commercials. That stuff just made me worse. I'm glad it works for some people but those commericals are so misleading to non-fibro folks. Congrats on your daughter's birthday! Enjoy your weekend.
    Rebecca

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  3. Lynn, I know that I hardly ever comment, but I've had the same symptoms all week. I've spent one day in bed, unable to sit up without throwing up. Lyrica has probably done more harm than good, and it can cause thoughts of suicide....as if we didn't already have enough trouble.
    I can't believe Alex is 21. She's still my little girl!
    I so clearly remember her gathering eggs with me and her uncle Steve when she was here once. She was so little and young.
    Give her my love, and tell her boyfriend to get a haircut.
    Call me sometimes. You'll just have to keep calling to find me somewhere besides the doctor's office or in-route. It seems that I'm spending all my time in some kind of care.
    I'm doing better, and I have only THREE chemo treatments left.
    I'll be through before Christmas.
    Thank God!

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  8. Here in Sicily no one really understands what fibromyalgia is, when I tell them about it they think it's a muscle problem and they tell me to join a gym. Who has the energy for that? I agree with you about Lyrica. Happy New Year!

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  9. Hello,

    I am a fellow member of the crazy life we live with Fibromyalsia and have experienced a recent break-though in fighting my symptoms . If you are anywhere near as frustrated and fed up as I was with the pain & truly want to help others with this horrific syndrome, please take just a few moment to read my personal testimony & decide if you would like to join me in healing our fellow Fibro-nians...

    In my opinion, Fibromyalsia is an invisible leech that latches onto our unsuspecting souls & can literally feel like it quickly sucks the life right out of us. Stunned, confused, and left writhing in pain, we are left feeling like a hollow-shell of our former selves.

    Doctors, specialists, lab tests galore for what feels like an eternity to get a diagnosis, just to end up with the doctors giving us some synthetic drugs that barely provide relief & in some cases - cause more symptoms & side effects!!

    Disabling whole body symptoms, severe depression/anxiety, chronic fatigue, excruciating pain, fibro-fog confusion, & so much more-- has definitely caused some major bumps in my life!

    Fortunately, my great friend introduced me to the best blessing I could have ever prayed for TRUE RELIEF!! The natural alternative therapy I started last month because of her, has brought renewed hope, joy, and happiness back into my life.

    80% of my severe fibro symptoms are already COMPLETELY GONE in just 2 weeks!! I am amazed at the transformation my body has achieved in such a short time. As an awesome added bonus, I have also lost 15 lbs since I started the program because of the overall health benefits! Yay!!

    I feel amazing, strong, healthy, and have gotten back the mental clarity and joyful energy I have missed so much!

    Words cannot describe how tremendously grateful I am for my friend to share this natural alternative therapy with me! The best thing I can think of to pay her back for how much she has done for me, is to PAY-IT-FORWARD to all of my fellow FIBRO Friends!

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    ReplyDelete
  10. Sounds like you had a terrible day yesterday...Hi :0) My names Valerie and I have had Fibromyalgia since 1996. Just checking out your blog and could relate to this post...for me it's my right hip and leg that's worse (sciatica). Come over and visit me sometime at www.fibromyalgiacareblog.com

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  11. Hello everyone! I'm an avid health-nut preparing for medical college, I came across this blog while doing research.
    I've suffered from depression my whole life, and a mom of my close friend has fibromyalgia. I feel for all of you in this struggle, words cannot express the pain of fibromyalgia/depression.
    What I've found in my research is that popping pills usually never helps, in fact it's often worse. The closest I've come to finding something to prevent the invisible disease is this http://www.youtube.com/watch?v=wDjDsIVWwZw&list=PL_57JIxfFMmTl5qKl0maMGqZ4pdlMM52Y
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  12. I had fibro for 20 yrs and I am now cured as of Mar 16 2013 . If your interested in my story , then drop me a line . Glenda

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  13. I recently turned 60 and have had fibromyalgia for 34 years; it took 15 years before I was diagnosed. As many have experienced, I was intially told it was "in my head" which I willingly took the blame for, then was given various "new" drugs and pain killers, all of which I couldn't tolerate or which resulted in such fogginess the next day I couldn't function. For many years, I was able to manage moderately with diet, stress management, and gentle exercise. I started a new career very recently which is very stressful and I have no retirement due to not working outside the home while raising a family and while attending college. My symptoms have gotten very severe the last year which has effected my ability to work, care for myself and home, socialize, and be physically active. Thankfully, I sought alternative medicine last fall and am beginning to see tiny improvements but my life feels very small right now. I fear I will lose my job (I am divorced and live alone), and I am unable to retire (I will have to work into my 70's) as I was a stay at home wife/mother for almost 30 years prior to divorcing then attending college for 8 straight years. I am feeling extremely anxious that my current quality of life will be what I will be facing for the rest of my life...

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  14. ...Sidenote; I would appreciate not having comments providing me with a "cure" that will solve all my problems as I have tried many, many different routes to healing and reading those will not be helpful to me. I need to be able to express myself and be heard by those who also struggle with fibromyalgia and understand the challenges.

    ReplyDelete