ok i hijacked Lynn's blog again, but wanted to have a bit of fun with it this time around. I was reading an article on Pet Peeves and how they effect you, so here is the question for the 82 followers of this will require you all to do a comment on this post, please dont just hit and run, actually comment please for i think it will be interesting to see what everyone says. Here is the deal Lynn has been struggling with stuff concerning her Fibro and I want to hear what everyone who reads this post biggest PET PEEEVE!!!!!! i mean what is your biggest one concerning the invisible disease, is it memory loss, is it how friends treat you, is it the lack of energy,,,,, please tell me your biggest pet peeve and then list a second one that has nothing to do with Fibro..........this is for spouse too who dont have the disease but lives with it to post also.
and i will start with my biggest on fibro is Lynn's memory loss, she wont remember something and she will get frustrated becuase she doesnt and i think this causes more issues with spouses then almost any other and has to rank in the top 3
peorsonal pet peeve would be to be lied to...
ok i know short post but we are still alive just dealing with the daily grind that is fibro, Lynn keeps wanting to post but draws a blank when its time to type,, so encourage her and comment on this post show her people are reading this and it matters..................
Jim
Monday, July 9, 2012
Tuesday, April 17, 2012
Another wasted day!
Well this has been a wasted day and I really hate that!!! I have always been a doer and a task master and having a body that won't let me do things makes me crazy! I go to bed with such high hopes for the next day and then the morning comes and I know that my body needs a few hours to get going but it is now 6:06pm and my body is still not going. It is so hard to explain but here goes.......I feel soooo run down, like I have worked a 60 hr work week. I mean I walk from the kitchen to the living room and I plop on the couch because I'm tired...I had such high hopes of getting our bathroom done today. I promised Jim it would be done and I don't like not being able to do what I said I would....I DON'T LIKE NOT BEING ABLE TO CONTROL MY BODY AND I DON'T LIKE WASTING MY DAYS!!!!! I'm supposed to be getting in the shower right now but the thought of standing up is exhausting me. This is also one of the times I hate it for Jim.....what I mean is lets say he comes home from work and wants to go somewhere together....that won't happen. Or worse yet Jim comes home from work and what does he see but his wife laying around being "lazy". He says he understands and trust me when I say that I have been soooo blessed with him for a husband but it is still hard not being able to be the wife I want to be for him when he comes home from work....(get your mind out of the gutter, haha) what I mean is having supper cooking or just being up moving around.
My friends don't see this part of fibro......they are getting on with their lives today and they think that I am too.....haha boy are they fooled!
Ok so I now have to get up and get in the shower, Jim's daughter just went into labor and have to go to the hospital. I'll be ready when Jim gets home....
My friends don't see this part of fibro......they are getting on with their lives today and they think that I am too.....haha boy are they fooled!
Ok so I now have to get up and get in the shower, Jim's daughter just went into labor and have to go to the hospital. I'll be ready when Jim gets home....
Monday, April 16, 2012
Trying something new
I have not been posting as much as I would like to because I have sooo much on my mind but getting it out is a whole nother story....so what I am going to try is to just post short little blip its about how I was feeling the day before or that day and what I did or didn't do.
Yesterday was actually a pretty good day except I had NO energy and feel like I wasted a whole day away! I mean I did things like went to church but them came home and crashed on the bed for a couple hours. ( i had plans to work outside or to paint my bathroom, which my bathroom is now on week 6 of not being done) I went to youth at church about 5:30 and then came and pretty much that was my day....I hate the fatigue that comes with fibro!!!!!!!!!!! That is still one of the hardest things for me to accept...:(
Today has been a better day so far....I have a very dear dear friend that has MS and her and I have decided that every Monday morning we would try to do an exercise class at the Y. Now keep in mind, neither one of us is a morning person and by that I mean we don't get going until at least 11:00 on a normal day so for us to do this class is huge!! This was our second Monday and it felt good. I do what I can and modify if needed but I am doing it!! After last weeks class I hurt in places I hadn't hurt in years and it felt good....yes, it was a good pain for once!!! I so want to get my body back in shape...
My friends Melissa is such a life saver to me some days....she understands me more than anyone (except for Jim) and there have been many days where we have just talked and cried for each other. Melissa deals with alot of leg pain and I pray everyday that it it taken away!! She is such a support person for me and always there for me and she knows that I would do anything for her!!
Now the next challenge for me is to do a class with my friend Michelle....that scares me! What I mean by that is, Michelle is in such awesome shape and told me that this class kicks her butt....it might just kill me then...hahahahahaha
So if this is my last post come look for my body at the Y....it will be laying dead in the exercise room!!!!!!
I am just hoping and praying that I can continue to do this...I wonder if my insurance will cover my membership since my doctor told me that I have to do this??????
Yesterday was actually a pretty good day except I had NO energy and feel like I wasted a whole day away! I mean I did things like went to church but them came home and crashed on the bed for a couple hours. ( i had plans to work outside or to paint my bathroom, which my bathroom is now on week 6 of not being done) I went to youth at church about 5:30 and then came and pretty much that was my day....I hate the fatigue that comes with fibro!!!!!!!!!!! That is still one of the hardest things for me to accept...:(
Today has been a better day so far....I have a very dear dear friend that has MS and her and I have decided that every Monday morning we would try to do an exercise class at the Y. Now keep in mind, neither one of us is a morning person and by that I mean we don't get going until at least 11:00 on a normal day so for us to do this class is huge!! This was our second Monday and it felt good. I do what I can and modify if needed but I am doing it!! After last weeks class I hurt in places I hadn't hurt in years and it felt good....yes, it was a good pain for once!!! I so want to get my body back in shape...
My friends Melissa is such a life saver to me some days....she understands me more than anyone (except for Jim) and there have been many days where we have just talked and cried for each other. Melissa deals with alot of leg pain and I pray everyday that it it taken away!! She is such a support person for me and always there for me and she knows that I would do anything for her!!
Now the next challenge for me is to do a class with my friend Michelle....that scares me! What I mean by that is, Michelle is in such awesome shape and told me that this class kicks her butt....it might just kill me then...hahahahahaha
So if this is my last post come look for my body at the Y....it will be laying dead in the exercise room!!!!!!
I am just hoping and praying that I can continue to do this...I wonder if my insurance will cover my membership since my doctor told me that I have to do this??????
Tuesday, March 13, 2012
Love the sunshine and the smell of cut grass....:)
It has been awhile since I wrote, I mean to everyday but just don't. The funny part is, with as much laying around as I do you would think I would write everyday. I think the reason is because it takes me sooooo long to just write one sentence!! I have to reread what I wrote about 10 times to check for grammar and just to see if it makes sense???? I drive Jim nuts when I'm writing and I ask him 20 times does this sound right??? I used to be such a good writer....
Some random things: I have finally given in and agreed to getting a new car. My car will be paid off in about a year and off course once it hit 100,000 miles it started needing repairs of sorts. I think we have spent about 2500.00 in the last 8 months and this past week we spent LOTS of money and it still needs about another 3000.00. Did I tell you I drive a BMW, as Jim calls it breaking my wallet? I kept saying lets pay the 3000.00 or so and pay off my car and that is still cheaper than buying a new car, but I am going for the new car...:) What is a car payment??? At least we won't have a Harley payment and the Jeep will be payed off in about 6 months....
Went to the beach last Monday....had all these plans and ended up not leaving the house until Thursday! I had a serious case of IBS....what I mean by that is I felt like someone had kicked me in the stomach 100 times and that my intestines where tied into a huge knot. My lower back was in pain and to top it off my fibro was rearing its ugly head!!!! I woke up every morning with the intention of riding my daughters bike hoping that would help but that went know where......
Friday was a better day and my hubby came to town to get me....so knowing I would see him made me feel better...:) Friday night my daughters boyfriends band, BELOW THE BASELINE, was the opening band at the House Of Blues, they were AWESOME!!!!!
Saturday we came home....
It was so nice to come home and find Kyle here, he cooked wings for dinner. He is amazing me everyday...he is turning into such a fine young man!!!
Yesterday started out rough but turned out better than I thought....the weather was PERFECT!!!! It took me 2 days to unpack but finally got it all done! I have sooooo much I want to do this week and really want to accomplish it!! I am praying my body will love the 70 plus weather and work with me!!!
Last night Jim told me something that really bothers me and it is one of those things that if I say something to someone they will be like O, no big deal. Why is that? Since I have known Jim we have always hung around with 3 other couples and we have sorta been nicknamed the Mavericks. (All the couples ride Harley's) Well when we started our small groups at church Jim and I could not go to the one that the 3 other couple go to because we were leading up the youth from church and that was when they were meeting for their small group. Jim and I went to another small group. Yesterday Jim told me that the small group our friends go to are going to call themselves the Mavericks. This is really bothering me....there is more to this but not going to get into it here....I just hate feeling as though we are the afterthought. I'm sorry Jim for writing about this but it really is bothering me....
I really enjoyed yesterday....after Jim got home from work he went in the back yard and was throwing the ball to Daisy and watching her run around and play was great...now if we only had some grass...hahahahahahaha
Daisy also got to go for 2 walks yesterday. I think her new nickname is chunk chunk, kinda like her mom....hahaha
I have really got to work on my will power!!!!!!!!!!!!!! I am so tired of going in circles with this weight and I want it off!!!!!!!!!!!!!!!! I want to be in shape!!!!! If I am going to live my life with fibro and ALL the other lovely ailments it brings, then I want to be in shape dag nab it!!!!!!!!!!!!
So on that note, I am off to clean and paint my bathroom.....I hope!!!!!!!!!
Some random things: I have finally given in and agreed to getting a new car. My car will be paid off in about a year and off course once it hit 100,000 miles it started needing repairs of sorts. I think we have spent about 2500.00 in the last 8 months and this past week we spent LOTS of money and it still needs about another 3000.00. Did I tell you I drive a BMW, as Jim calls it breaking my wallet? I kept saying lets pay the 3000.00 or so and pay off my car and that is still cheaper than buying a new car, but I am going for the new car...:) What is a car payment??? At least we won't have a Harley payment and the Jeep will be payed off in about 6 months....
Went to the beach last Monday....had all these plans and ended up not leaving the house until Thursday! I had a serious case of IBS....what I mean by that is I felt like someone had kicked me in the stomach 100 times and that my intestines where tied into a huge knot. My lower back was in pain and to top it off my fibro was rearing its ugly head!!!! I woke up every morning with the intention of riding my daughters bike hoping that would help but that went know where......
Friday was a better day and my hubby came to town to get me....so knowing I would see him made me feel better...:) Friday night my daughters boyfriends band, BELOW THE BASELINE, was the opening band at the House Of Blues, they were AWESOME!!!!!
Saturday we came home....
It was so nice to come home and find Kyle here, he cooked wings for dinner. He is amazing me everyday...he is turning into such a fine young man!!!
Yesterday started out rough but turned out better than I thought....the weather was PERFECT!!!! It took me 2 days to unpack but finally got it all done! I have sooooo much I want to do this week and really want to accomplish it!! I am praying my body will love the 70 plus weather and work with me!!!
Last night Jim told me something that really bothers me and it is one of those things that if I say something to someone they will be like O, no big deal. Why is that? Since I have known Jim we have always hung around with 3 other couples and we have sorta been nicknamed the Mavericks. (All the couples ride Harley's) Well when we started our small groups at church Jim and I could not go to the one that the 3 other couple go to because we were leading up the youth from church and that was when they were meeting for their small group. Jim and I went to another small group. Yesterday Jim told me that the small group our friends go to are going to call themselves the Mavericks. This is really bothering me....there is more to this but not going to get into it here....I just hate feeling as though we are the afterthought. I'm sorry Jim for writing about this but it really is bothering me....
I really enjoyed yesterday....after Jim got home from work he went in the back yard and was throwing the ball to Daisy and watching her run around and play was great...now if we only had some grass...hahahahahahaha
Daisy also got to go for 2 walks yesterday. I think her new nickname is chunk chunk, kinda like her mom....hahaha
I have really got to work on my will power!!!!!!!!!!!!!! I am so tired of going in circles with this weight and I want it off!!!!!!!!!!!!!!!! I want to be in shape!!!!! If I am going to live my life with fibro and ALL the other lovely ailments it brings, then I want to be in shape dag nab it!!!!!!!!!!!!
So on that note, I am off to clean and paint my bathroom.....I hope!!!!!!!!!
Tuesday, February 21, 2012
Good timing......
So much for any plans I had made for this past weekend, such a spackling the downstairs bathroom, painting some trim on the outside of the house and working in the yard....:(
Jim started painting the trim above the garage and some of the trim around the windows and around lunch time on Saturday he came in the house to lay down "just for a few minutes" and didn't get up until he went up stairs to crawl into bed. I am not sure what Jim got but whatever it was it got him good this time. Just a couple of weeks ago he was sick with some sort of bug and was down for a couple of days. That was unusual in itself but to get sick twice so soon that is just not Jim!!!!! Especially as sick as he was this time.....I think from Saturday afternoon until early Sunday evening Jim might have spoken 20 words to me...Jim didn't go to work on Monday and for him to do that I KNOW HE FEELS BAD! He never misses work! My hubby is the kind of man that can't shut work off. We are on vacation and he is still working....when he is at home he is still working....today is Tuesday morning and he is still feeling a bit sluggish but he is up and at work and I am praying he is ok!! I am just hoping that whatever he had has run it's course and is long gone!!
The REAL BLESSING in this past weekend.............I felt really good and was able to take care of my hubby..:) And to top it off....Daisy was such a good girl....:)
We had a beautiful snow fall Sunday night.....:) Yea, we are having a winter!!! Of course it was mostly gone by Monday evening and it is going to be in the mid 60's by Friday. But we had winter for a day....:)
Jim started painting the trim above the garage and some of the trim around the windows and around lunch time on Saturday he came in the house to lay down "just for a few minutes" and didn't get up until he went up stairs to crawl into bed. I am not sure what Jim got but whatever it was it got him good this time. Just a couple of weeks ago he was sick with some sort of bug and was down for a couple of days. That was unusual in itself but to get sick twice so soon that is just not Jim!!!!! Especially as sick as he was this time.....I think from Saturday afternoon until early Sunday evening Jim might have spoken 20 words to me...Jim didn't go to work on Monday and for him to do that I KNOW HE FEELS BAD! He never misses work! My hubby is the kind of man that can't shut work off. We are on vacation and he is still working....when he is at home he is still working....today is Tuesday morning and he is still feeling a bit sluggish but he is up and at work and I am praying he is ok!! I am just hoping that whatever he had has run it's course and is long gone!!
The REAL BLESSING in this past weekend.............I felt really good and was able to take care of my hubby..:) And to top it off....Daisy was such a good girl....:)
We had a beautiful snow fall Sunday night.....:) Yea, we are having a winter!!! Of course it was mostly gone by Monday evening and it is going to be in the mid 60's by Friday. But we had winter for a day....:)
Friday, February 17, 2012
Beautiful day.....
This is going to be a quick post because the one I started on Valentines day has ended up in cyber space???? I just want to say a few things.....I love the time of day between 7:00 and 8:00 pm. Why? Because that is the time of day when Jim and I watch Family Feud together and talk and laugh. It can be a bad day for both of us but when that comes everything stops and it is just us....I know some of you will probably say it is a lame show but we usually get a chuckle out of it and it is "us" time!!!!!
Second I have come to really like the bar area in our kitchen...Why? Because after Jim comes home from work and changes clothes alot of time when he doesn't have something to do he will come and sit and talk to me while I am cooking. (this is on the days I am up for cooking) sometimes he will even help me by chopping things but mostly it is the conversation I love.....
Third thing, if I am having a really bad day and am laying on the bed when he comes home from work he will come lay down with me and take 20 - 30 minutes or so and just talk to me about his day....:)
Valentines day is all about love and is one day a year well I get to celebrate loving my husband every day of the year.....Now don't get me wrong there are days where I don't like him and there are days where I just want to be left alone but on those days I am still madly in love with him! (and i know there are days he doesn't like me too)
Having fibro is enough to test any relationship and it has made ours stronger.....
I just want to say.....I love you Jim!!!
Friday, February 10, 2012
It never gets any easier, does it?
In case I wanted to forget what a full fledged flare feels like I had one slam right into last night!!! My week has been up and down with pain and being tired and I tried fighting it....I also tried being a good girl and didn't do very much, hahahaha not that I could if I wanted too! Yesterday of course I had plans to go to the Y and take Daisy for a walk neither of which were done. I think if I had someone to do either with it would have been easier just for the moral support. Of course it would have been at a slow pace but of course everyone is busy with their own lives.
I am so blessed to have an awesome mother in law. I needed to take this lamp that I got from my mother (that she got when we lived in Holland and it was hand made in 1920 to 1930 in Belgium, not sure??) to a store downtown and she went with me and she drove.....:) It is not really a lamp but a chandelier of sorts, hand carved out of wood that needs to be wired and basically made ready for electricity. I can't wait to hang it up in my dining room I will post a picture when I get it up. Anyway, when we left there we went to a place called Daisy's and I of course drooled over everything. It is a place that has booths set up with different peoples wares for sale....:) I found the cutest doggie outfit for my Daisy, it is a sundress...hahahaha
It was great to get out of the house. As soon as I got home, it was straight to the couch for me and that is where I stayed pretty much the rest of the day....:(
We were supposed to go to the 2nd Fibromyalgia support group meeting last night. I was looking forward to going because I had met a friend last time and was looking forward to talking to her plus I told her I would be there. We actually got in the car and drove a bit down the road and I asked Jim to take me home. I just couldn't do it. I wasn't going to be able to sit thru it...I was so sad. We went home and I went back to the couch. I could feel my body slowly go into a dark painful hole! Kyle came by to visit and I didn't even get up I just layed there and eventually fell asleep. I remember trying not to move and that my body was going in to a full blown flare! When I woke up I wanted to crawl into a hole and die that is how bad I felt.
Jim is such an AWESOME husband!!!!!!!!!! I just wanted to throw that in....
Crawled up staires and then remembered that I didn't have any sheets on the bed...ugh! I was going to wash them and since I had not been up stairs forgot all about it...my dear sweet husband didn't fuss just took to making the bed. I wanted to cry, I felt like such a bad wife! I barely remember crawling into it and falling asleep but I do remember waking up all through the night because of my pain. It was off the charts!!!!I didn't think morning would ever come but then again I wasn't sure if I wanted it too because my pain seems worse in the day. Finally I couldn't take it anymore and I got up and took my major pain pill about 5 a.m.
I am the one who gets up with Daisy and takes her potty and feeds her and Gizzy while Jim gets ready for work. I take my pain meds then me and Daisy usually go back to bed for a bit. This morning I couldn't do it.....I hate that Jim had to do it!!! I don't like feeling useless as a wife or as a person!!
The good news is I am starting to feel better....:) Of course I have been laying down all morning doing pretty much nothing......
Talk about feeling useless...for the last 3 years I have been in charge of something at our church called J J J , Juice, Java, Jesus, starting at 9:30 for our visitors we have coffee, pastries and fruit.
What I would do is ask members of our church to bring things each Sunday, well I am not doing that any more. The past couple weeks it has been hit or miss on our table and people that say they would bring things forget or just don't bother. Well, that reflects bad on me sooooo I have decided to pass this on to someone else. It is church and I can't say anything to the people that "forget" so it just looks like I am being slack! When I told the person in charge of this area that I was stepping down I thing she was relieved!!! I wanted to cry!!!! There was no, why???? Just an ok, I will find someone else to do it, I know you don't need the stress!!! I CAN DO THINGS PEOPLE!!!!! I AM NOT USELESS!!!!! I ACTUALLY USED TO BE A VERY IMPORTANT BUSINESS WOMAN!! I COULD MULTI TASK WITH THE BEST OF THEM!! I HAVE A BRAIN....IT REALLY BOTHERS ME THAT PEOPLE THINK I AM AN INCOMPETENT PERSON, SOMEONE THAT CANNOT BE TRUSTED TO DO WHAT THEY SAY THEY WILL!!
Yes I am ALOT slower than I used to be! Yes I might have to ask questions more than usual, but I am sensitive and I do realize that people wonder if I am capable of doing things and the answer is yes I can!!!
sssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssssss
I am so blessed to have an awesome mother in law. I needed to take this lamp that I got from my mother (that she got when we lived in Holland and it was hand made in 1920 to 1930 in Belgium, not sure??) to a store downtown and she went with me and she drove.....:) It is not really a lamp but a chandelier of sorts, hand carved out of wood that needs to be wired and basically made ready for electricity. I can't wait to hang it up in my dining room I will post a picture when I get it up. Anyway, when we left there we went to a place called Daisy's and I of course drooled over everything. It is a place that has booths set up with different peoples wares for sale....:) I found the cutest doggie outfit for my Daisy, it is a sundress...hahahaha
It was great to get out of the house. As soon as I got home, it was straight to the couch for me and that is where I stayed pretty much the rest of the day....:(
We were supposed to go to the 2nd Fibromyalgia support group meeting last night. I was looking forward to going because I had met a friend last time and was looking forward to talking to her plus I told her I would be there. We actually got in the car and drove a bit down the road and I asked Jim to take me home. I just couldn't do it. I wasn't going to be able to sit thru it...I was so sad. We went home and I went back to the couch. I could feel my body slowly go into a dark painful hole! Kyle came by to visit and I didn't even get up I just layed there and eventually fell asleep. I remember trying not to move and that my body was going in to a full blown flare! When I woke up I wanted to crawl into a hole and die that is how bad I felt.
Jim is such an AWESOME husband!!!!!!!!!! I just wanted to throw that in....
Crawled up staires and then remembered that I didn't have any sheets on the bed...ugh! I was going to wash them and since I had not been up stairs forgot all about it...my dear sweet husband didn't fuss just took to making the bed. I wanted to cry, I felt like such a bad wife! I barely remember crawling into it and falling asleep but I do remember waking up all through the night because of my pain. It was off the charts!!!!I didn't think morning would ever come but then again I wasn't sure if I wanted it too because my pain seems worse in the day. Finally I couldn't take it anymore and I got up and took my major pain pill about 5 a.m.
I am the one who gets up with Daisy and takes her potty and feeds her and Gizzy while Jim gets ready for work. I take my pain meds then me and Daisy usually go back to bed for a bit. This morning I couldn't do it.....I hate that Jim had to do it!!! I don't like feeling useless as a wife or as a person!!
The good news is I am starting to feel better....:) Of course I have been laying down all morning doing pretty much nothing......
Talk about feeling useless...for the last 3 years I have been in charge of something at our church called J J J , Juice, Java, Jesus, starting at 9:30 for our visitors we have coffee, pastries and fruit.
What I would do is ask members of our church to bring things each Sunday, well I am not doing that any more. The past couple weeks it has been hit or miss on our table and people that say they would bring things forget or just don't bother. Well, that reflects bad on me sooooo I have decided to pass this on to someone else. It is church and I can't say anything to the people that "forget" so it just looks like I am being slack! When I told the person in charge of this area that I was stepping down I thing she was relieved!!! I wanted to cry!!!! There was no, why???? Just an ok, I will find someone else to do it, I know you don't need the stress!!! I CAN DO THINGS PEOPLE!!!!! I AM NOT USELESS!!!!! I ACTUALLY USED TO BE A VERY IMPORTANT BUSINESS WOMAN!! I COULD MULTI TASK WITH THE BEST OF THEM!! I HAVE A BRAIN....IT REALLY BOTHERS ME THAT PEOPLE THINK I AM AN INCOMPETENT PERSON, SOMEONE THAT CANNOT BE TRUSTED TO DO WHAT THEY SAY THEY WILL!!
Yes I am ALOT slower than I used to be! Yes I might have to ask questions more than usual, but I am sensitive and I do realize that people wonder if I am capable of doing things and the answer is yes I can!!!
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