tag:blogger.com,1999:blog-8073072745301054011.post7305099354275640150..comments2023-10-31T05:55:39.068-04:00Comments on The Invisible disease, the journey of a Fibromyalgia Fighter: Behind closed doorsLynn-Mariehttp://www.blogger.com/profile/08516486419680891806noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8073072745301054011.post-84082658070592023602011-12-23T14:08:34.423-05:002011-12-23T14:08:34.423-05:00I understand, it's unfortunate that we have to...I understand, it's unfortunate that we have to fight so much. I wish I could find a doctor to understand, a family that understands. I wish they all stopped expecting meto be superwoman.Marie-Louisehttps://www.blogger.com/profile/05066006330331913852noreply@blogger.comtag:blogger.com,1999:blog-8073072745301054011.post-67846471853005718042011-10-24T15:29:32.241-04:002011-10-24T15:29:32.241-04:00I cried reading this post. I understand so much o...I cried reading this post. I understand so much of what you are going through. I also am a fibromite (with many other diagnosis) and am married to a Jim. It is so hard on both of us. I hate that he has to ask me if he can touch me or hug me, and I hate even worse when I have to tell him no or if I flinch in pain. I haven't been able to cook a dinner in over a year. I also understand falling asleep all the time. I fall asleep in my shower chair sometimes and it scares me that I'll hit my head in the shower and drown. Somedays I am awake only 4 hours. People say they wish they could sleep all the time, too, but I wish I could stay awake all the time. I hope things get better for you and I hope Social Security realizes how bad it is. You are right-Lyrica is so far from a cure for fibro it isn't even funny. I hate the Lyrica commercials on TV, it makes it look like we can pop a pill and we will be "all better." I wish! I wish so badly for a cure, but I don't think we are anywhere close to it, yet. I do believe there will be a cure someday, though. The best we can do is try to manage each symptom as it comes. So far I haven't been able to figure that one out, and neither have my doctors. I was diagnosed with fibro at age 15 in 1996, I'm 30 now.OzarksUSAhttps://www.blogger.com/profile/11343284174685698739noreply@blogger.comtag:blogger.com,1999:blog-8073072745301054011.post-92222904835444330232011-10-16T15:46:23.181-04:002011-10-16T15:46:23.181-04:00Oh sweetie.... Do I understand that one! Posting p...Oh sweetie.... Do I understand that one! Posting pictures where you're smiling and happy so that life looks normal! Except it isn't normal anymore. Nothing is normal anymore. Just know we all do the same thing...<br /><br />Hugs (very light one)Rosemary Leehttps://www.blogger.com/profile/18413577350795054949noreply@blogger.com