Monday, March 30, 2009

Ok I woke up this morning and was wide awake....I mean wide awake!! I was loving it!!! I came back up stairs about 7:40 and layed down then forget it from there! I could not stay awake! I would open my eyes for a second and then they would close right back! I couldn't control it! I had to get up when Kyle locked himself out of the house....that was about 11:45. Right now my body is kinda numb and heavy but I am going to get going after I finish typing this. I am NOT going to lay around.....my eyes are heavy and my upper body is heavy too!!! OK this sucks totally!!! I just napped for a second and now my eyes are half open. My eyes won't stay open...napped again for a second!! I also have the jerks, my body keeps twitching......my legs, arms and my face. That started last night. Well actually it happens all the time. my cat just jumped on me so i will type later.

Sunday, March 29, 2009

I actually wore make-up to church today!!!! I so don't want to jinx myself.....but I have to say it...I am still clear headed!! My legs and ankles are killing me and I feel like a swollen pig but I am clear headed!! My energy was pretty ok today. I started to get tired in church this morning, couldn't keep my eyes open there for a short while but I survived it.
Jim and I played cards last night with his mom and dad and I actually could concentrate. It was a wonderful feeling.
I can't wait to start working out AGAIN. I am going to get it right yet.....I AM going to look the way I feel on the inside!!!! If Valerie Bertineli can do it at my age, so can I!!! She is 47/48......
Well I am going to bed so I can hopefully have a good day tomorrow.

Saturday, March 28, 2009

It has been another good day. I love waking up and being half way alive when I wake up!!!
Having my pain but being awake is so much better then having no energy! It is like being double wammied (sp)
I actually dried my hair and did not break out in a BIG SWEAT!! Usually when I dry my hair it so wet from sweating that it doesn't matter if I dry my hair or not.....Actually when I cleaned the offices yesterday, I didn't sweat then either. I loved it!!
My pain is still intense but I am feeling like a person....
Right now I am just laying here working on the pain in my legs and hips....I can't wait to do the swimming class at the Y. Hopefully I can start next week sometime.

Friday, March 27, 2009

OK, I am back now. I took a nap then we went to see Jeff, Leatrice and family and we gave them some love.
I am still feeling drained and my legs are about a 7 on a scale of 1 -10 but my brain is still clear.
Going to bed
My thoughts and prayers are with my friends Jeff and Leatrice McDaniels and their family. Jeffs father passed away today. Joe had been struggling for quite awhile now and he is in a much better place....with GOD and he is feeling NO pain!! So please keep Jeff in your thoughts and prayers as he deals with everything.....
Today has been a pretty good day for me....My pain has been there but again my brain seems clear! I still can't remember things and feel crazy but I love not having the fog!! I have been fighting a headache for the last couple of hours and am about ready to take to take something for it. I am not sure if it because I have cut back on my Effexor or what but I am going to take it.
I am trying to type this and can't keep my eyes open! I am all of a sudden totally drained and my arms feel so heavy.....this stinks!!
I am going t stop now and will be back later...

Thursday, March 26, 2009

O MY GOSH!!! THIS HAS BEEN A GREAT DAY!!! MY LEGS HURT AND MY HIPS ARE HURTING BUT MY HEAD HAS BEEN CLEAR AND I HAVE BEEN UP AND MOVING! I FELT SOMEWHAT NORMAL AT TIMES! YEA YEA YEA YEA YEA YEA YEA!!!!!
I AM TIRED AND AM GOING TO BED......
I LOVED TODAY!!!!!
ALL I CAN SAY IS THAT TODAY IS AN AWESOME DAY!! MY LEGS ARE GOOD....MY HIPS ARE A LITTLE STIFF BUT I AM GOING TO FIX THAT WITH SOME STRETCHING!
MY HEAD IS CLEAR!!!!
I AM GOING TO TAKE A SHOWER AND GO DO STUFF!!!!!!

Wednesday, March 25, 2009

Just had to say this....my head feels pretty clear right now. this may not sound like alot to you but to me it is AWESOME! I am still in pain though but having a clear head is something I am not used to! Please pray it stays this way!
Going to bed now......
I am asking myself...when is enough, enough??? I read stories of how people have gotten over the pain, have energy...how??? I have read about what I need to do but I have to have the energy to do some of them..I want to go walk, work out, do things around the house but I am sooo tired of the ups and downs!! Yesterday I got weeding done around part of the house and today I am a total waste.
This morning Jim was wanting to snuggle before he went to work and I couldn't even move I hurt so bad. My lower back is locking up on me too. I really really really wish I felt like I did when I met him!! I wouldn't wish Fibromyalgia on my worst enemy ( which I actually don't have one...that I know of)
I think I am going to try Lyrica again....I am cutting my Effexor out so I might swap one for the other. My swelling, hopefully can't get any worse than it is now. My fingers and toes look like sausages every day.
I love the moments when I have some energy and don't hurt from head to toe but they are far and few between, My mental state wanders sometimes and I wonder if it will leave me for good sometimes!
My husband is a saint as far as I am concerned. I know when he asked me to marry him he was not expecting this from his wife. He signed up for the "old" me and I feel so fortunate he has not tried to turn me in for a better model.... This is not fair to him!! I ask all the time why??? All I can do is accept that this is what God has planned for me. I am sorry Jim!!!!
In a perfect world I would have a personal trainer come to my house and we would work out in my own gym every day. I am going to beat this!!!! I just need to feel sorry for myself somedays...ok most days!!
My cat and dog love having me home!!!!
My legs are on fire and in alot of pain today....seems to be my everyday now! My lower back just wants to burn and kink up on me. I look at my friends and so want to be normal!!!
Jim, I am so glad you enjoyed supper last night. It was nice to make you happy!!! I love you!!

Tuesday, March 24, 2009

Had a good day outside weeding.....Of course I am now paying for it but it was wonderful!!
I don't know what is up with my legs though???? The pain is so intense and all consuming....does that make sense?
OK so after I blogged last night, everything changed! As I was laying down trying to sleep my legs started to hurt so bad I could not fall asleep right away. Of course once my sleeping medicine kicked in I couldn't stay awake. Does that make sense??? Jim and I tried talking but I was concentrating so much on the pain I couldn't really talk. I'm calling to make an appointment today with one of my doctors about the pain. It has just gotten way out of control! My leg pain is controlling my life and I WANT TO CONTROL MY LIFE!!!
Today I am going to do some cleaning and hopefully some painting. I have a bench I want to paint...

Monday, March 23, 2009

Today was a pretty good day for me...I am so happy. After cleaning Ms. Virginia's house I came home and crashed for awhile. I thought I was done for the day but guess what??? I wasn't!! Kyle cut the grass and Jim edged the yard for me. Talk about a bright spot in my day....I actually planted a few seeds and did some sweeping and cleaning up in the back yard. Not much but enough to thrill me!! I love the yard being edged...it looks awesome!! Thank you so much baby...you do know my love language!! I need to give you my wish list...haha
I even cooked supper and cleaned the kitchen. Of course once I stopped and sat still my whole body locked up but it was wonderful. My legs, knees, and hips hurt but I am getting ready to go to bed and I will sleep.
I hope to get some cleaning done in the house tomorrow...hopefully it will be a good day too!!
This has been a much better day for me! I woke up about 9:00 and checked e-mail, then left to meet Michelle to clean. We cleaned from 11:00 until about 2:30 and I made it!!! I sweated so much that I look like a drowned rat...my hair was so wet but I made it. I had to grit my teeth every once in awhile and tried not to groan to much. I loved it!! I am hopefully going to be able to do a little flower planting here in a few minutes. Kyle is coming home to cut the grass and I love that smell so this should be very relaxing. ( for me, not kyle) Right now I am typing this and having to fight to keep my eyes open and my arms are getting very heavy so I need to get up and get going. My pain level right now is good and I want to take advantage of that.
Will say more later.....

Sunday, March 22, 2009

This has been a pretty emotional day for me! I woke up in such pain, I couldn't stand it! All I knew to do was cry...I am so tired of the pain. When I say pain, I am not talking about a mild pain but a pain that I would take a morphine drip for. You look at me and I look ok on the outside. I try not to talk about it around my friends to much because I know they don't understand the pain. It is hard to get through my day sometimes and people just don't see it. I am late somewhere and someone makes a joke about it but then again they don't know what it took for me to get there. I am going to be cleaning a ladies house with my friend (buddy) Michelle and I am scared to death. I have committed to doing this every other Monday and am scared...I want my house to be clean, my yard to look great and I can't do it. Everyone says that I shouldn't worry about it but when I look at my yard through the window and see what a mess it is, it gets to me. I wish we could hire someone to do our yard at least once a week. Yard work is one thing that Jim does not like to do but he does it for me. Kyle cuts the grass when asked and for that I thank him. I love to work outside and miss it so much...it is my therapy!!
This past week has been really really bad for me. The pain has been so intense I wish I could explain it.
Now to the good part of this blog....my husband!! God has truly blessed me with him!! I wish I could show him how much he means to me...he is so kind, loving and PATIENT! He truly tries to understand what I am going thru!! He is my best friend....
I am going to try and start a support group for people with Fibromyalgia...I am going to see if there is one for their spouses. He deserves so much......I love him so much!!
My parents are so awesome!! I hope they both know how much I love them and appreciate everything they do for me.....Yes, Aunt Kitty, your younger brother turned out to be such an awesome person!! I am sure I drive them crazy some days just to say hi...I call some days 3/4 times. Just wish we lived closer!! I see my life becoming like"Everybody Loves Raymond"!! HAHA!!
OK, Alexx...I don't know where to begin other than to say she is my gift from GOD!
It has been so bad this week, that when I take my medicine the pain is still there. My hip joints have been in alot of pain too! I can't wait to walk tonight..haha! I don't want to but yet I do want to walk...I love that time with Jim! I enjoyed our talk on the way home from taking Alexx to meet my dad...he trys so hard to make my life easier! He deserves so much!!
Thru all this belly aching...I do have a great life!!!

By the way, leave me a comment some time!!
Last night was a terrible night for me!! I was in pain and getting irritable with people, I really didn't mean to. Enough is just enough!!!! I went to bed hoping I would sleep through it but that didn't happen. I woke up about 1:00 and my legs were jerking, kinda like restless leg syndrome but it was hurting really bad. Then my arms started doing the same thing. There was no way I could sleep and I was getting very "bitchy" So I went down stairs and watched tv then finally slept. Of course I woke up very achy due to sleeping in an wierd position. Now I am going to get ready for church. I really don't want to go but I know laying here is just going to make me more irritable! I will feel better for going!!
This pain is just getting crazy! I am so ready for it to go away I HATE THIS!!!!
Will write more later...

Friday, March 20, 2009

Today was a pretty ok day until about about 4:00 then I wanted to cut my legs and feet off! It has gotten to be where I just can't stand it!!! All I can say is thank goodness for pain medicine. Only problem, it only lasts for awhile and then it wear offs!! I have never taken more than 2 a day but I might start taking 3 a day VERY soon. ( I don't want to do that) I am laying on my bed and am going to take a sleeping pill hoping that I won't feel it anymore!! It sooo hurts!!!!
I had a great day with Alexx! She is such an awesome daughter....I LOVE HER!!
In fact she is sitting right beside me....waiting for my laptop. I am going to sign off now because I am such a good mom and I know she wants to use it. HAHA
As for my memory......what memory????
I am in so much pain right now, I can't stand it!!!!!!!!!!!!!!
My legs and feet are burning with pain, they are throbbing with pain!!
I am laying here wondering if it will ever stop? I mean it has been like this since about 1:00. Time to go away.
I hope my sleeping pill works. IT'S WORKING! MY EYES KEEP CLOSING!!!

My hips are achy.

I am going to sleep now......it's jim, me, maggie our dog, gizzyour cat all in the bed. One happy family. All I need to make it perfect is for Alexx to climb in....haha

Good night

Thursday, March 19, 2009

I am so glad yesterday is over! My leg and foot pain was unbearable at times!
Today I am going to get my daughter....YEA! I love knowing that she is in the house with me, the same town, it gives me the warm fuzzies. It is going to be a busy weekend but I'll love it. Suck up the pain and the tiredness if it is to bad then I know Alexx will be with me.
Woke up this morning about 5:00 and just couldn't sleep, not sure why? I finally fell back to sleep about 6ish. I got out of bed about 10:00, which for me is great. My fingers are so swollen, it feels like they are stretched and my skin is going to pop. I know my arthritis is only going to get better..haha.
I am going to go walk Maggie and stretch my body.

Wednesday, March 18, 2009

Boy what a beautiful day it has been. Fibromyalgia is much better in warm weather..... I actually did some yard work today, not much but some! I trimmed all around the mailbox and picked up sticks in the yard. It was not to hot, just right. I wish it could stay in the 70's all year long. I am thinking about going to the tanning bed for the warmth. Right now my legs though are about a 500 on a scale of 1 to 10! I keep moving around because I can't stand the pain. I want to scream but I know it won't help....I am not going to let this beat me!!!!!
Alexx is coming up tomorrow, that always makes me feel better...my baby girl. (at 17)

Tuesday, March 17, 2009

Yesterday was a very looonnngggg day for me! I did much ofnothing, I did take a shower though. I was miserable...laying around, legs, knees killing me. My arms were heavy and my shoulders were so tight I just couldn't get comfortable. When I went to bed I couldn't get comfortable but wanted to sleep just to not feel the pain. I don't like doing nothing, such a waste of time. Especially when there is so much to do..
I did not sleep very well, the stomach burning kept waking me up. I have been awake since about 5:00. I am sure I will be take a short nap before I get going. I so want today to be different from yesterday!
I also had and have burning pain from my groin area and up. I was able to go potty a little yesterday but am still sooo miserable! I am going to do some walking today with Maggie and hopefully that will help.
I am happy, Michelle and I got a regular cleaning job. Every other Monday we will be cleaning a ladies house. This means I will have to get going on those days, which I like alot!! Pam is going to be doing a baby show in April and she is going to allow us to put flyer's in her goody bags. We are going to be offering "cleaning for the new mom"! What a great baby shower present!! Have your house cleaned before or after the baby is born. We might even offer 15% off if they mention the flyer???
I am going to sign off, take a small nap then get my day going. Walking, ironing, and some cleaning. I might even get going outside....I want to clean the grass out of the cracks in driveway. Plus Maggie and Gizzie could be outside with me.

Monday, March 16, 2009

I am a walking bomb! Those of you that know me, know what I'm talking about!!
I am still in my p.j.'s...have no energy to do anything! My brain wants to do something but my body is saying..hahaha. Right now I am trying to read The Fibromyaglia Nutrition Guide. I have got to start exercising! It is not a choice.....it is a must!! I keep closing my eyes and stopping while I am typing this. I really am so tired of this.......
I have an idea for a support group, I'll post it after I check out my idea to see if it will work.

Sunday, March 15, 2009

Getting ready for youth group...just woke up from a nap and I am trying to become alive now. It was so very hard getting ready for church, I am so glad I did though! As usual it was a great sermon. I must admit, I couldn't keep my eyes open towards the end. I was not bored just got so tired all of a sudden. I should have gotten up and walked in the hall for awhile.bbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbbb OOP I just closed my eyes for a little bit and my finger was on the key!
Still taking my tummy medicine. Actually it is another one he gave me to try. No luck yet but the dam has to break sometime, I hope!
I keep falling asleep.
I so want to sleep....I have gotten absolutely nothing done today or this weekend! It is so frustrating not getting things done. I just want to clean my house!!!
My legs hurt today but the rest of my body feels like I have the flu. I am hoping for sunshine this week....it helps!! I think I am going to talk to Jim about joining Planet Fitness, I have to do this!!!!!!!!!!!!!
Gizzy is sounding better....

Saturday, March 14, 2009

This has been a long day! I had to go to a meeting this morning and other than that I have done nothing all day! I have not even left the house! I layed around and watched the Sci Fi channel and laughed at how stupid the movies are...there is a gator theme going on today. I have just been pretty useless today having no energy. I did have a spurt about an hour ago, enough to sweep the kitchen floor. I did have intentions to mop the floor but that kinda went out the window. My neck and shoulders have been hurting me all day. As usual my legs are hurting. I have just been so tired all day. Lets put it this way, I didn't even go to the hospital to see Benjamin Dean (Maggie and Robs new baby) and I so wanted to see him.
I know Jim has been getting frustrated with me this week....
Hopefully tomorrow will be a better day...it has rained all day!!

Friday, March 13, 2009

I actually woke up early again this morning but it didn't last 2 long....I couldn't stay awake! My body felt like a heavy weight.....
I felt as if my shoulders and neck would explode! The pain was pretty bad for the first 1/2 of my day. If only I could have a massage every morning...I am dreaming I know!
Once I got going, I did take Maggie for a walk. I need to get energy some how. Maybe I'll have enough energy tonight to actually take a shower. I cleaned Jim's offices and I actually didn't
break out in a bad sweat today. It has been so nice.
I should get my blood test back next week, which will let me know if I am heading to menopause...
Gizzy is doing ok, just please continue to keep him in your thoughts and prayers.
Well, I gotta go...we are having a baby!! Ha..got your attention didn't I??? Not me and Jim but our friends Maggie and Rob. (Leatrices daughter) Just got a call they are at the hosp. This means I have to take a shower...yea!

Thursday, March 12, 2009

Well I went to the doctors today. I got blood drawn to test me for early menopause!!! I don't know if that is a good thing or not....we are trying to figure out why I am sweating sooo much. To the point of it being very embarrassing! If it is not early menopause, then we are going to try and ween me off one of my medicines, Effexor. Then if that does not work, then we go from there.
I also got another medicine to HOPEFULLY help me with my tummy issues! Keep yours fingers crossed!!
My feet have really been giving me some issues today, hurting. My legs are about a 6 today and upper body not so bad, about a 4. I did wake up pretty easy today. Actually, Jim woke me up about 8:40 with a phone call and I actually stayed awake. My brain felt pretty clear and that was sooo nice. Right now I am typing this and my arms feel pretty heavy. I want to take a nap but am not, have to get ready for bible study.
My poor baby, Gizzy is very sick! Please pray for him to get better....

Wednesday, March 11, 2009

OK where is it all going????? If it is not coming out, where is it????? This is beyond funny!!! My body is so swollen, my fingers look and feel like sausages that are going to explode....I want to scream, cry, yell, throw something!!!
My pain is there, all over my body and I have this on top of it....Sooo please imagine how I feel right now!
I don't want to type anymore.....

Tuesday, March 10, 2009

I wonder how many laxatives I can take before I blow up? You know it is sad when you take them, 2 days in a row and nothing happens...and people wonder why I am in a ill mood some days...or say I weigh a ton!!
Last night my legs were aching pretty bad ( 5 out of 10)
My facial sweating was very bad on the way to Paul and Michelles for out IST meeting...It got better when I sat in front of the window, I was so relaxed. Beautiful night....even the bike ride home was nice and I was wearing shorts. Thanks Michelle for the jacket...
Slept really good last night only woke up once with Maggie. I slept hard, don't really remember Jim leaving...but I do remember your kissing me. Always remember that!!!! Yummy!!
When I finally woke up, I felt like I had been hit by a brick..a very big brick. As I always say, the house could have caught on fire and I would not have known.
I did wake up about 9:00 am just couldn't move. I hate that my body doesn't work so well first thing some days!!
Today my legs are about a 6....my ankles and feet a 6...my shoulders and arms feel so tied up in knots they could break!!!
I have to get going now though I have an appointment to get to....

Monday, March 9, 2009

Wow it was a busy weekend and a beautiful weekend. Saturday Jim and I had a bunch of friends over for a cookout...(thank you baby for helping me clean) Sunday morning was a tough morning. Once I got started though, it was pretty good. Took a much needed nap during the afternoon. Really glad I did because we went bowling with the youth from the church. I must admit, I bowled the worst 2 games of my life. Had an awesome time though. We have some great youth in our church!! Check out the pictures on my facebook.
Back to Friday night...it was pretty tough for me. My legs were in such pain, I didn't really want to talk to anyone. My ankles and feet are becoming more of a problem every day.
Saturday I was so happy to be able to get things done....my pain was there but I had the energy to get stuff done. I took my time but got it done.
Sunday morning as I said was a tough start but my pain was pretty o.k. THE ONLY PROBLEM I WANT TO COMPLAIN ABOUT IS SWEATING! FACIAL SWEATING!! I am soooo embarrassed to be seen out when this starts happening. I can't control it!! I look like I have been swimming once I am done with the "episode". I really am mortified when it happens....it is really gross and I can't control it. I have been on line researching and now have a doctors app this week. Just one more reason for me not to want to go anywhere...this has got to stop...please!
If anyone has suggestions, I am listening. On line they talk about a surgery??????
Today is a pretty laid back day for me..kinda catching up, recovering from the weekend. Pretty busy week ahead....My body is really not hurting just very heavy feeling!

Saturday, March 7, 2009

Lack of energy....have a good day!!!

Thursday, March 5, 2009

Good morning,

It was nice this morning, I woke up about 9:30 and am pretty clear headed. Doesn't mean I am moving but I was awake which I love.
Yesterday was a pretty good day for me. Michelle and I cleaned our first house, the first of many we hope. My energy was good (my time of the day) my legs, hips and ankles hurt but I was excited to be doing something. Making some money!!!! I kept going until we got home from our marriage class. I was so ready to crash when I got home...very very tired (I wanted to sleep so bad but waited) and my whole body was hurting. I think I did pretty good though. My ankles and feet have been hurting more lately, not sure why?? As well as my hips????
I am sooooo looking forward to this weekend....WARM WEATHER!! I am hoping to do some yard cleaning and bike riding. Open the windows and do some cleaning.....did I say WARM WEATHER!!!!
Oh snap, can't keep my eyes open!! I am going to take a shower and run a few errands. This has taken me about 45 minutes to type
Everyone say a prayer for Maggie White. I spoke to her this morning and she doesn't think she will make it another week. Rob got called out last night to West Virginia and she is putting herself on bed rest. I am going to be taking her to her doctors appointment tomorrow. Can't wait to see what the doctor says.
I am going to stop by Planet Fitness today and see what kind of deals they have going on. I have GOT to get back into working out, I know it helps in sooo many ways! Exercise is one of the best things for fibromyalgia.
Very little stomach movement!
Have a great day

Wednesday, March 4, 2009

Last night was a pretty hohum night. I was just kinda blah, trying to ignore the hurting! I will be glad when this week is over....my energy level has been zero and I have not gotten anything done. It is driving me crazy!! I feel like such a fat slob to be honest! I am just waiting for someone to say just get going then I will scream!
I did wake up with a pretty clear head this morning, that is a great thing. I'm going to be leaving the house in a little while to help Michelle clean a house. I am so excited to be doing that! (does anyone need their house cleaned? we have great rates) I am going to pace my self today and hopefully it will be the start to my upward swing. My upper body is hurting today along with my legs and feet. Right now it is about a 5. I am just so happy to be doing something, just don't want to start falling asleep...I would love a massage all over my body, I soooo wish insurance covered it. For fibromyalgia I think it should. I would also love a nice WARM pool to swim in. That would feel awesome right now...I can just feel the warm water soothing my body and taking all my stress away!!!
Well, I am off to take a nice warm shower and get ready...
For those of you that are wondering, my stomach problem is still there...very little movement! I am making a doctors appointment for my female doctor today and will be discussing with him as well. Have a great day...I am done rambling.
P.S. My memory is really starting to make me mad! I am not a dummy!
Also leave me a comment sometime

Tuesday, March 3, 2009

I wish I could just once wake up and be energized! Like when you wake on a spring day and the smell of fresh cut grass is in the air...you just jump out of bed and feel GOOD!! I can remember what it feels like.......I actually get a nauseous feeling sometimes thinking about it!
I think I need the tanning bed....anyone want to donate a tanning bed to my cause??haha
I truly believe the the heat would be awesome for me!
My back is not doing so good today and my feet hurt. I am as always feeling tired...so making myself do this, type....this has probably been one of my worst weeks as far as getting things done..I hate it.
I am hoping to take Maggie for a walk this afternoon with Mellissa...

Monday, March 2, 2009

I am loving the snow! Wish I could build a snowman with Jim...hint! This has been a pretty low key week for me, not much energy or desire to do anything.
I read the carepage web pages again and could so relate to much to what everyone is saying..I am not crazy! I talked with Michelle last night about starting a support group and I am going to check into it again. I realize after reading all the blogs last night and today how it helps. I can only imagine how it would be to talk it out with other people who have fibromyalgia.
My legs today are about a 7 on a scale of 1-10 today. For some reaon I have pressure on my chest today...I feel like someone is pressing down.
My arms are heavy and they hurt...that could be why I am putting off ironing???
I HATE NOT GETTING THINGS DONE!! IT IS SOOO NOT ME~~

Sunday, March 1, 2009

I am sooo happy!! I have found a new website called carepages and there are people on there talking about their symptoms....extreme pain, extreme tiredness, feeling like you have been hit my a mack truck in the morning, fibro fog, forgetfullness, ibs and several other. It reminds me I am not crazy!!
JUST TO LET EVERYONE KNOW FIBROMYALGIA DAY IS MAY 12th
This past weekend has been pretty o.k.. My energy level has come and gone.I have not gotten much done except a little ironing and rearranging of dust! I just don't have any get up and go. I am making myself type this, my eyes keep closing. My arms feel they have weights hanging off of them. We did go to the matinee yesterday, we saw, Taken. It is a pretty good movie. Came home and layed around the rest of the day. Same for today...we went to church, had lunch and have been laying around ever since.
I have every intention of ironing but just can't seem to get up. Most people would think, just get up. Well, it is not that easy!! As I have said before think back to your worst case of the flu where you just had no energy and COULDN'T move. That's me!! I DON'T want to just lay here, I want energy to move!! My neck and shoulders feel like they are so tight, they could pop or break if I move them the wrong way...My legs have been up and down on pain. At times they were a 100 and others a 4. I would say never below a 4...I always know they are there. Sometimes standing hurts, sometimes sitting hurts. I am going to finish now and take a nap. It has taken me roughly 40 minutes to type this little bit.